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9987216057 www.parkinsonssocietyindia.com/ deepshikhamat@gmail.com |
Health
| Project Name | Treatment and Rehabilitation of people with Parkinson's and their caregivers | |||||||||||||||||||||
| Amount Utilized (INR) | 228634 | |||||||||||||||||||||
| Project Description | PDMDS conducts its community-based Group rehabilitative therapy at the weekly sessions Pan India for people with Parkinson’s, as well as their caregivers. These sessions are provided with physiotherapy, occupational therapy, speech therapy, dance and movement therapy, art therapies, cognitive rehabilitation, yoga, etc. A Multidisciplinary group-based rehabilitation is also conducted using digital platforms on a weekly basis. Special sessions for caregivers are conducted focusing on caregiver stress and burden as well as strategies to assist them in caregiving. Healthy ageing program is being done at old age home. Education and awareness activities are undertaken by networking with professionals, senior citizens clubs, religious and charitable organizations, Government and non-government organizations, residential complexes, municipal corporations, corporate organizations, colleges etc. For the lesser privileged PwP’s, assistance is provided through medications and assistive devices. Owing to the debilitating and progressive nature of the condition, the PwP’s and caregivers require varied and scientific updated rehabilitative strategies and education. Publications and resource materials are constantly being developed by the PDMDS and provided for the beneficiaries of the programme. | |||||||||||||||||||||
| Locations | Pan India | |||||||||||||||||||||
| Causes | Healthy Community > Healthcare access,Healthy Community > Health awareness,Healthy Community > Capacity building of healthcare providers & caregivers,Healthy Community > Assistive devices & therapies for persons with disability | |||||||||||||||||||||
| Beneficiary Group | Elderly,Persons with Disabilities | |||||||||||||||||||||
| Beneficiary Description | Beneficiaries consist of people with Parkinson's (PwP), their caregivers and families, Senior citizens, allied health professionals, and students, general population for sensitization. For PwPs: Age Group- 50 onwards Gender- Both Males and Females No of PwP- 3000 No of people sensitized and trained- 40000 No senior citizens in healthy ageing programmes- 5000 | |||||||||||||||||||||
| Impact | Through the services PDMDS created the following impact: • Reaching out to more People living with Parkinson’s and their caregivers • Provide multidisciplinary rehabilitation and care to PwPs and caregivers. • Improvement in Quality of Life and facilitating independent living amongst PwPs • Symptom management and improvement in mobilization amongst PwPs • Ease and improvement in performance of activities of daily living • Improvement in psychological, cognitive and emotional health • Decrease in feelings of loneliness, and a building of feelings of fellowship and belonging • Building of a social support network • Reduced caregiver burden and improved relationships • Creating Awareness amongst the general public to aid in timely diagnosis and sensitize them about the manifestations of the condition. • Improved quality of life for residents of old age homes | |||||||||||||||||||||
Activities Conducted
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| Project Name | Treatment and Rehabilitation for people with Parkinson's and their caregivers | |||||||||||||||||||||
| Amount Utilized (INR) | 109271.69 | |||||||||||||||||||||
| Project Description | This project delivered free of cost multidisciplinary rehabilitation and care through support group centres for people with Parkinson's and their caregivers established in various cities pan India. The multidisciplinary model of care focussed on self-management strategies for ‘Activities of Daily Living’ to improve independence and quality of life and reduce caregiver burden and stress. Hence the sessions were held in a group format to deliver physiotherapy, occupational therapy, cognitive rehabilitation, counselling, dance and movement therapy, creative therapies etc. Multidisciplinary model of care is delivered through various services: Physical and online Group Therapy sessions for people with Parkinson’s and their caregivers, need based individual phone counselling, multilingual exercise programmes, instructional videos and documents. Allied health professionals, health professionals in private and government are given training for management of Parkinson's Disease. Through ‘Healthy Ageing’ program we reach out to senior citizens and those living at senior residential facilities. Through this program, we conduct exercise and activity sessions in group format that promote physical, cognitive and psychological well being and also educate on neurological conditions prevalent in the elderly population, particularly Dementia, Alzheimer’s, Parkinson’s and Stroke. | |||||||||||||||||||||
| Locations | Pan India | |||||||||||||||||||||
| Causes | Health > Preventive healthcare,Health > Medical Support,Health > Mental health | |||||||||||||||||||||
| Beneficiary Group | Elderly,Persons with Disabilities | |||||||||||||||||||||
| Beneficiary Description | The beneficiaries for the project are people with Parkinson' who are above 60 as well as young onset Parkinson's patients who are between age group of 30- 60 yrs. Parkinson's affect the whole family so caregiver's sessions are also conducted to support them through this journey and decrease caregiver burden. Senior citizens in old age homes and attending senior citizen associations too are members of benefitted by the healthy ageing sessions. Youth in colleges and schools are educated through internship programs. Training of allied health professionals in physiotherapy, psychology, nursing field are trained to manage the disease. | |||||||||||||||||||||
| Impact | PDMDS is providing free rehabilitation programs to improve the quality of life of people with Parkinson’s Disease and other neurological disorders including Stroke, and Dementia amongst many others. The impact has been : - Rehabilitation and Educational programs for PD and their caregivers - Improved Quality of life of the residents of the old age homes - Increased awareness about the importance of Healthy Ageing and neurological conditions - Collaboration with the organizations in the area including Government, N.G.O.s, Social Organizations etc. - Sensitized Medical officers and personnel at Primary Health Centres and sub centres on neurological conditions of elderly and the resultant referrals of patients to Government Hospital | |||||||||||||||||||||
Activities Conducted
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| Project Name | Treatment and Rehabilitation of People with Parkinson's | |||||||||||||||
| Amount Utilized (INR) | 225314 | |||||||||||||||
| Project Description | The beneficiaries are provided with free of cost rehabilitation support and care. The funds from Marathon were utilized for the following activities: 1. Educational, interventional and awareness programs to promote physical and psychological wellbeing through old age homes and senior citizen groups. 2. Network and raise awareness amongst Govt, Non Govt. Organizations, Medical and Allied Health professionals on the need for programs for the Elderly 3.Support and rehabilitation for neurological conditions such as Parkinson’s, Stroke and Dementia through group rehabilitation 4. Patient welfare through free medicines 5. Resource materials for education purposes | |||||||||||||||
| Locations | Mumbai City > Maharashtra (MH),Mumbai suburban > Maharashtra (MH) | |||||||||||||||
| Causes | Health > Preventive healthcare,Health > Awareness & advocacy | |||||||||||||||
| Beneficiary Group | Elderly,Persons with Disabilities | |||||||||||||||
| Beneficiary Description | The beneficiaries of the program are both senior citizens and those patients who have Parkinson's Disease and their caregivers. There are around 700 patients with PD who attend the support groups. Their caregivers too are educated about PD and given special support on need basis. There are 500 senior citizens in various senior citizen homes who stay in senior residential homes who get healthy ageing sessions. Administrative and staff of the old age homes are trained on healthy ageing strategies. | |||||||||||||||
| Impact | • Reaching out to more People living with Parkinson’s and their caregivers • Provide multidisciplinary rehabilitation and care to PwPs and caregivers. • Improvement in Quality of Life and facilitating independent living amongst PwPs • Symptom management and improvement in mobilization amongst PwPs • Ease and improvement in performance of activities of daily living • Improvement in psychological, cognitive and emotional health • Decrease in feelings of loneliness, and a building of feelings of fellowship and belonging • Building of a social support network • Reduced caregiver burden and improved relationships • Creating Awareness amongst the public to aid in timely diagnosis and sensitize them about the manifestations of the condition. | |||||||||||||||
Activities Conducted
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