Orphan Disease Foundation (ODF) is a registered initiative committed to supporting underserved and under-recognized diseases in India. Under this initiative, GIBS (Global IC/BPS Society) and FEPPA (Female Pelvic Pain Association) work together to improve awareness, diagnosis, and treatment access for patients suffering from chronic pelvic pain, especially Interstitial Cystitis/Bladder Pain Syndrome (IC/BPS)—a poorly understood and often misdiagnosed condition affecting women.
We collaborate with clinicians, researchers, and patient advocates to build capacity, share knowledge, and drive policy-level recognition of these orphan diseases.

Appeal

Your support will help us:
Set up Pelvic Pain Clinics across India, especially in underserved cities
Train doctors and healthcare workers in diagnosing and managing IC/BPS and related pelvic pain conditions
Create and distribute multilingual patient education materials
Organize awareness campaigns and community screenings,
Fund support groups and mental health counselling for patients who often suffer in silence
Social Media Awareness
Despite its debilitating nature, chronic pelvic pain is often dismissed or misdiagnosed. With your help, we can bring visibility, care, and dignity to the lives of thousands of women across India.