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Parkinson's Disease And Movement Disorder Society

About Us

Bibs Available: 10 (Please contact the NGO for the same)
Cause Category:
Health
Telephone:
022-66106249
Address: Parkinson's Disease & Movement Disorder Society, C/o Dr. B. S. Singhal, 131, Bombay Hospital, 12, Marine Lines
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Aligned to the following Sustainable Development Goals

Who We Are

Photos / Videos

17 photos/videos found.

Raising Funds For

Parkinson’s is an incurable progressive condition requiring life long management. Quantifiable measures on the direct beneficiaries i.e People with Parkinson’s Disease have shown an improvement in various aspects of the condition such as alleviation of motor and non – motor aspects (rigidity, posture, balance, sleep disturbances, caregiver burden), better management of activities of daily living, improvement in the quality of life and mood elevation.
PDMDS intends to
1. To increase the reach of PDMDS to all parts of our country where no services exist.
2. To Develop a Multidisciplinary Centre for PD pan India with the following objectives :
 Rehabilitation & Support
• Provide support group programs and additionally specialized individual therapy for people with Parkinson’s and their caregivers unable to attend a support group program.
• Programs for young onset PWP’s who refrain from attending support group programs
• Programs for caregivers
 Dissemination of Knowledge : Educate people with Parkinson’s and their caregivers on various symptoms, implications and treatments available
 Awareness : Increase awareness about Parkinson’s Disease to the geriatric and general public
 Develop Resource Material : Brochures, pamphlets, audio-visuals, booklets, newsletters to educate people with Parkinson’s and their caregivers.
 Training : Design and Conduct training programs for professionals and volunteers.
 Develop, monitor and evaluate support centres throughout the country.

Fund Utilization in 2020

Total funds raised in 2020 - INR 700979

Project NameTreatment and Rehabilitation of people with Parkinson's
Amount Utilized (INR)700979
Project DescriptionParkinson's disease is a debilitating neurological condition affecting all facets of ones’ life due to the varied symptoms. A diagnosis of PD demands lifelong management, rehabilitation and expenditures. At the treatment and rehabilitation stage, the awareness of and accessibility to allied healthcare fields such as physiotherapy, occupational therapy, counseling, speech therapy, etc is limited.
To overcome these limitations, the PDMDS has developed a community based “Multidisciplinary Model of Care” through which people with Parkinson’s (PwPs) are provided ongoing education and therapy to effectively manage their condition. In addition, to management of the motor and
non - motor symptoms of the disease these centers provide emotional and psychological support to PWP’s and their families who are often left alone fighting this debilitating condition. The PDMDS today has grown to 19 centres in the city of Mumbai. PDMDS has replicated the Mumbai paradigm to other parts of the country where Parkinson’s rehabilitation was unavailable. This programme currently being conducted in over 60 centers across the country has facilitated a better quality of life. Another objective of PDMDS is to raise awareness among general public and provide training and capacity building.
LocationsMumbai City > Pan India,Mumbai suburban > Pan India,Thane > Pan India,Central Delhi > Delhi (DL),South West Delhi > Delhi (DL)
CausesHealth > Supporting public health centre,Education > Awareness & advocacy
Beneficiary GroupWomen,Elderly,Persons with Disabilities
Beneficiary DescriptionThe beneficiaries are people who are suffering from Parkinson's Disease and their caregivers, their families, the general public who is sensitized. The PwP are usually above 60 yrs. However increasingly there are people in the agegroup of 25 to 50 yrs who have been getting this disease. PDMDS has an young onset Parkinson's Disease group for them. As per the nature of this disease, more men are affected than women. PDMDS caters to more than 1000 people with Parkinson's through its various services and has reached out to approximately 25000 people through its awareness programmes.
ImpactCase study analysis, focus group interviews, and individual interviews with members have highlighted the positive qualitative implications of the programme such as acceptance of the diagnosis, return to the former active lifestyle before the negative impact of the diagnosis, independence and self – reliance, better communication and inter-personal relations, exchange of ideas and strategies to improve symptom management, feelings of belonging and familiarity, increased motivation.
Indirect beneficiaries are members of the general public who are being educated and made aware about the same with the anticipation to create a pool of contributors and supporters to the cause of this lifelong condition.
Activities Conducted
NoActivity / Item / BeneficiariesQuantity / Number, if applicable
1 Treatment and Rehabilitation of people with Parkinson's Disease 1000

Fund Utilization in 2019

Total funds raised in 2019 - INR 1594930

Project NameTreatment and Rehabilitation of Parkinson's Disease
Amount Utilized (INR)1594930
Project Description1. Multidisciplinary group – based rehabilitation to PwPs and caregivers consisting of Physiotherapy, Occupational Therapy, Speech Therapy, Counselling and Cognitive Interventions, Dance and Movement Therapy, Life Skills Training, Caregiver interventions .
2. Need – based individual consultations for rehabilitation and counselling.
3. Rehabilitation and counselling for home – bound PwPs and their families.
4. Patient welfare initiatives such as free medications, assistive aids and devices, conveyance allowance to access the centres, to the economically disadvantaged PwPs.
LocationsSouth Delhi > Delhi (DL),Ambala > Haryana (HR),Kolhapur > Maharashtra (MH),Aurangabad > Maharashtra (MH),Udaipur > Rajasthan (RJ)
CausesEducation > Awareness and Advocacy,Health > Preventive Healthcare,Health > Medical Aid,Health > Mental Health
Beneficiary GroupElderly,Persons with Disabilities
Beneficiary DescriptionParkinson’s is an incurable progressive condition requiring life long management. Quantifiable measures on the direct beneficiaries i.e People with Parkinson’s Disease have shown an improvement in various aspects of the condition such as alleviation of motor and non – motor aspects (rigidity, posture, balance, sleep disturbances, caregiver burden), better management of activities of daily living, improvement in the quality of life and mood elevation. Case study analysis, focus group interviews, and individual interviews with members have highlighted the positive qualitative implications of the programme such as acceptance of the diagnosis, return to the former active lifestyle before the negative impact of the diagnosis, independence and self – reliance, better communication and inter-personal relations, exchange of ideas and strategies to improve symptom management, feelings of belonging and familiarity, increased motivation. Indirect beneficiaries are members of the general public who are not directly impacted by Parkinson’s, but are being educated and made aware about the same with the anticipation to create a pool of contributors and supporters to the cause of this lifelong condition.
ImpactFollowing are the goals met through utilised funds:
1. Provide specialized individual therapy for people with Parkinson’s and their caregivers unable to attend a support group program.
2. Programs for young onset PWP’s who refrain from attending support group programs
3. Programs for caregivers
4. Dissemination of Knowledge : Educate people with Parkinson’s and their caregivers on various symptoms, implications and treatments available
5. Awareness : Increase awareness about Parkinson’s Disease to the geriatric and general public
6. Develop Resource Material : Brochures, pamphlets, audio-visuals, booklets, newsletters to educate people with Parkinson’s and their caregivers.

Activities Conducted
NoActivity / Item / BeneficiariesQuantity / Number, if applicable
1 Young Onset Rehabilitation Group NA
2 New PD centres across Maharashtra, Haryana, Delhi, and Rajasthan 5

Fund Utilization in 2018

Total funds raised in 2018 - INR 2044502

Project Nametreatment and Rehabilitation
Amount Utilized (INR)2044502
Project DescriptionAt PDMDS, we use a Multidisciplinary Approach in rehabilitating individuals with Parkinson's Disease. As part of the project, we conduct free-of-cost support groups across more than 50 centers all over India, where patients undergo physiotherapy and psychological rehabilitation. In addition to this, we also conduct expressive art therapies, speech therapy, and yoga camps. We have many patients who cannot afford medical expenses for the disease and therefore, we provide medical assistance for them.
LocationsThane > Maharashtra (MH),Udaipur > Rajasthan (RJ),Sri Potti Sriramulu Nellore > Andhra Pradesh (AP),Indore > Madhya Pradesh (MP)
CausesHealth > Preventive Healthcare,Health > Medical Aid,Health > Mental Health ,Health > Awareness and Advocacy
ImpactThe PDMDS started with one community based support centre in Mumbai in 2005, today has grown to 21 centres in the city of Mumbai. PDMDS has replicated the Mumbai paradigm to other parts of the country where Parkinson’s rehabilitation was unavailable. This includes centers in the states of Maharashtra, Goa, Telangana, Gujarat, Rajasthan and Kerala, Assam, Chandigarh, Madhya Pradesh and Andhra Pradesh. The PDMDS has also initiated community based rehabilitation in the urban slums of Dharavi , rural projects in Vasind and Assangaon and a tribal project in Keprada. Through our projects, we estimate that we are reaching out to about 3000 people with Parkinson's Disease, pan India.
Activities Conducted
NoActivity / Item / BeneficiariesQuantity / Number, if applicable
1 Dance Movement Therapy (Rehab) N/A
2 Healthy Ageing N/A
3 Kick Boxing (Physiotherapy module) N/A
` 0 of ` 2500000
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